Motor neurone disease (MND) is a fatal neurological condition
The MND Association:
- Funds research
- Supports patients carers and professionals and
- Campaigns for better care.
Information
We have high quality information and resources for people with MND and their carers and families. This includes our comprehensive, award winning Carers Guide while our website area dedicated to carers can be found here.
Our young people’s hub, with information designed specifically for those aged 4-10 and 11- 18, is located here.
Helpline
Our MND Connect helpline is available Monday to Friday between 9am - 4pm. You can call 0808 802 6262 or email mndconnect@mndassociation.org
Grants
We offer grants to help the main carer to take a break from their support duties. This may be a pamper day, a short rest or assistance towards pursuing a hobby. It can be applied for up to 12 months post-bereavement.
We also offer a young person’s grant to help support purchases of anything that may help them in their day-to-day life.
This can include things like buying a laptop or going on a school trip with all the information about our grants here.
Local support
We provide a range of local support including Association Visitors and a network of branches and groups. Information about our services can be found here.
Campaigning
The Association campaigns and raises awareness so the needs of people with MND and everyone who cares for them are recognised and addressed by the wider society.
Our campaign, Support MND Carers, calls on the Government to do more to support the thousands of unpaid carers of people with MND.
Sally Hughes, Director of Services and Partnerships says:
“Supporting carers is a crucial part of our work at the MND Association as caring for someone with MND can be incredibly difficult due to the everchanging and complex needs of the disease.
"Many carers are under immense pressure and struggle to access the vital support they deserve, which means their own health takes a toll while looking after their loved one.
"We are proud to join forces with other passionate organisations for Carers Week and combine our voices to shout louder on behalf of unpaid carers.”
You can visit our website here or call the MND Connect helpline on 0808 802 6262 or email mndconnect@mndassociation.org